CSREC’s Dementia and Care in our Communities project, seeks to understand the experiences of people affected by dementia from minority ethnic communities in the Forth Valley. We will work with people affected by dementia and their carers from South Asian, Chinese and East Asian, African and Caribbean, Polish, East European, and other minority ethnic backgrounds to explore the extent and impact of dementia within these communities, and to provide information and support about living with dementia to people affected by the condition. We will also work with these communities to raise wider awareness of dementia. By doing so, we will contribute to the development of dementia-friendly communities, and reduce the stigma affecting many people living with dementia.
(image credit: Balhousie Care Group)
We will connect with community groups in the Forth Valley region to conduct outreach work, and work directly with people affected by dementia and their carers to understand their experiences of living with the condition. Through this learning, we will develop a resource that will enable dementia service providers to enhance their understanding of the specific support needs of people affected by dementia and their carers from minority ethnic communities, the barriers experienced by people from these communities when seeking to access dementia support services, and good practice when supporting people affected by dementia and their carers from South Asian, Chinese and East Asian, African and Caribbean, Polish, East European, and other minority ethnic backgrounds.
The key aims of the project are:
• To study and develop an understanding of the extent, and impact of dementia on the lives of affected individuals from South Asian, Chinese and East Asian; African and Caribbean; Polish, East European; and other ethnic minority backgrounds.
• To study and develop an understanding of the impact on the lives of paid/unpaid carers of those of South Asian, Chinese and East Asian, African and Caribbean, Polish, East European and other ethnic minority backgrounds living with dementia.
• To provide information to those living with dementia and their carers on relevant dementia related services and where necessary, support them to access these services.
• Raise awareness about dementia within the larger South Asian; Chinese and East Asian; African and Caribbean; Polish and East European communities and other ethnic minority backgrounds.
To help us to achieve our aims, we are searching for people affected by dementia and their carers from these communities to chat with Sarah Noone, our Dementia Project Worker, to share their experiences of living with dementia, and their thoughts about the support services available to them. We are also inviting people who have experience of dementia to join the project’s advisory board, to ensure that our decision-making is informed by the views and needs of people affected by dementia. If you would be interested in taking part in the project or joining our advisory board, or you would like more information, please contact Sarah at email@example.com or call 01324 610950
As this new project develops, we will share regular updates via the CSREC website and social media. Be sure to follow us on Twitter at @Dementia_CSREC for the latest news.
This work is supported with funding from the Life Changes Trust. The Trust is funded by the Big Lottery. The Life Changes Trust was established by the Big Lottery Fund in April 2013 with a National Lottery grant of £50 million, to support transformational improvement in the quality of life, well-being, empowerment, and inclusion of two key groups in Scotland: people affected by dementia, and care experienced young people. If you would like further information about the Life Changes Trust, please visit their website: https://www.lifechangestrust.org.uk/